Posted by Gill Currie on 30 May 2012
Meningitis Research Foundation members have shown that meningitis and septicaemia can have a long-lasting and sometimes devastating impact on the person affected. We also know from hearing about members’ experiences that there can also be a lasting effect on the family and others who care for the person affected. MRF is working in conjunction with Dr Hareth Al-Janabi, a health economist at the University of Birmingham, to study these wider impacts.
MRF’s current Counting the Cost
campaign has highlighted the importance of vaccines in preventing the huge lifelong costs that can result from severe cases of meningitis and septicaemia. However there is very little published evidence on the wider costs of these infections, including their impact on household members and families closest to people affected. In the current study, we are trying to estimate this sort of impact in a way that can be used in decision-making about introducing new vaccines and addressing long-term care needs.
The research is now underway, with survey questionnaires being sent out across the UK. If you receive one, we’d love to hear from you, so please get in touch. Your responses are really important in collecting as much information as possible about this unknown area, even if the person you know hasn’t had any long term after effects.
If you have any questions, you can always contact our Freefone
helpline 080 8800 3344.
Our photo shows Hareth Al-Janabi and MRF staff discussing the questionnaire during one of the early focus groups with members