Meningitis Research Foundation is a national registered charity established in 1989. From small beginnings, the Foundation has grown into an international charity at the forefront of fighting death and disability resulting from meningitis and septicaemia.
Since the charity's inception, thousands of people have become members of the Foundation, working together to help us achieve our vision of a world free from meningitis and septicaemia.
The charity's staff are located at offices in Bristol (registered office), Belfast, Dublin and Edinburgh and work to achieve the charity's objects in a professional and effective way. The Foundation's Chief Executive is Chris Head.
Board of Trustees
The Foundation is governed by the Board of Trustees:
Officers:
Beverley Pace is Chair of the Foundation. Beverley's daughter recovered from meningitis. Beverley runs her own business and has particular IT expertise.
Angela Pick - Honorary Treasurer - and husband David, who is also a trustee, run a West Country business.
David Moëd is Company Secretary. David is a Chartered Accountant and works as a consultant whilst also running a number of businesses. His daughter contracted meningitis at the age of 8 months from which she made a full recovery .
Trustees:
Harold Lambert is the Foundation's Medical Advisor. He was Professor of Infectious Diseases at St George's Hospital and Medical School and Visiting Professor at the London School of Hygiene and Tropical Medicine.
Linda MacHugh is Director of Urban Regeneration Strategy in the Department for Social Development in Northern Ireland. She joined the Foundation in 1993, following the death of her brother from meningococcal septicaemia.
Margaret O' Brien became involved with the Foundation after the death of her 17 year old daughter.
David Pick is a West Country businessman.
Kim Taylor is the Foundation's Honorary Secretary. Her son, Ben, recovered from meningitis. Kim works in the media.
Debi Warman is Creative Services Manager of a top 20 Communications Consultancy based in London. As a member of the Foundation, she has been involved in various fundraising projects since 1991.
Patrons
The Foundation is supported by fourteen patrons: Fiona Armstrong, Claire Byrne, Phil Collins LVO, James Dyson CBE, Gareth Hale, Pat Jennings OBE, KSG, Dr Hilary Jones, Ewan McGregor, Liam Mulvihill, Norman Pace, Arabella Sackhett, Rory Underwood MBE, and Sir Ian and Lady Helen Wood.
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Membership of Associations
Meningitis Research Foundation is a member of the following:
The Association of Medical Research Charities (AMRC)
AMRC was founded in 1972 and established as a formal organisation in 1987. The AMRC objects are to further medical research in the UK generally and in particular to advance the effectiveness of those charities of which a principal activity is medical research. Meningitis Research Foundation joined the AMRC in July 1998.
The Telephone Helplines Association (THA)
The THA was established in March 1996 and works with helplines to achieve the highest quality response to all those seeking information, advice and help via the telephone.
Meningitis Research Foundation joined the Association in 1997. THA members have adopted the Guidelines for Good Practice as the fundamental principle for running a quality helpline service.
In 2003, the Foundation's 24 hour helpline was accredited with the Telephone Helpline Association's Quality Standard.
Awards and accolades
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The 2008 Chartered Institute of Public Relations' Communications Award
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The 2007, 2000 and 1998 Pharmaceutical Marketing Communiqué Patient Association of the Year
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The 2007 winners of the Patient and Public Involvement category of the Association of Medical Research Charities' Science Communication Awards
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In 2007, the charity achieved Approved Provider Standard from the Mentoring and Befriending Foundation for our telephone befriender programme
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In 2007, the Foundation was awarded the Quality Mark Gold Award for the level of employee participation in Payroll Giving
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In 2006, the Foundation was awarded the Association of Medical Research Charities' Certificate of Best Practice in Peer Review, for our research administration procedures
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The 2004 Community Support Programme award for our Get it Sussed work with students and young adults in the Republic of Ireland
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Judy Tomlinson, a charity member, won 2004's Best Fundraiser in the national Marks and Spencer Volunteer Awards
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Scottish member Olivia Giles won the Institute of Fundraisng Volunteer Fundraiser of the Year, following nomination by the Foundation and Meningitis Trust for her work on the hugely successful fundraising event, Leap for Meningitis
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In 2004 The Battery Inn won a Charity Oscar from the Northern Ireland Council for Voluntary Action for their support of the Foundation
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The 2003 Astra Zeneca prize for best oral presentation about the Foundation's UK Meningitis Blood Survey
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In 2002, the charity's Freefone 24 hour helpline was the first, and remains the only, meningitis helpline to attain the Telephone Helpline Association's Quality Standard
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In 2003, charity supporter Henry Thompson was awarded a CBE in regognition of his charitable work
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The 2001 Pharmaceutical Marketing Communiqué Awards' Best Patient or Public Education Project for Meningitis Baby Watch
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The 2001 Lorber Prize for Foundation-funded research at Imperial College, London about the often fatal uncontrolled blood clotting that occurs in some patients with meningococcal septicaemia
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The 2000 Pharmaceutical Marketing Communiqué Launch of the Year for Meningitis Baby Watch
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The 1998 Pharmaceutical Marketing Communiqué Patient Campaign of the Year for Get it Sussed
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The 1998 PR Week Best Healthcare Campaign
Page last updated 18.04.08